Advance Care Planning Engagement Among Muslim Community-Dwelling Adults Living in The United States of America

UNCG Author/Contributor (non-UNCG co-authors, if there are any, appear on document)
Ratchneewan Ross (Creator)
S. Sudha, Associate Professor (Creator)
Debra C. Wallace, Associate Dean for Research and Daphine Doster Mastroianni Distinguished Professor (Creator)
The University of North Carolina at Greensboro (UNCG )
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Abstract: Advance care planning (ACP) is a cornerstone of self-determination for the type of care provided at the end of life. Despite many national efforts to improve American adults' engagement in ACP, statistics indicate low engagement. Low engagement, especially among racial and ethnic minority populations, immigrants, people with lower socioeconomic status, young adults, rural residents, or non-English speakers, is common. Advance care planning engagement among Muslims living in the United States has been minimally studied. The purpose of this study was to explore Muslims' engagement in ACP. A cross-sectional descriptive design was used. Participants were recruited from Islamic organizations through convenience and snowball sampling. Engagement in ACP was measured by the Advance Care Planning Engagement Survey. A sample of 148 Muslims (18-79 years of age) participated in the study. The average engagement scores ranged from 1.97 to 2.09, with about two-thirds in the precontemplation stage. Significant differences in engagement scores were found according to health condition and end of life experiences. Results suggest a need for further collaborative efforts by health care providers, policymakers, and researchers to mitigate the disparities in ACP engagement in the American Muslim community.

Additional Information

The Journal of Hospice and Palliative Nursing 22(6), 479-488
Language: English
Date: 2021
advance care planning, decision-making, disparity, end of life, health behavior, Islam, minority, Muslims, palliative care, race, transtheoretical model

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